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Digital Seminar

Listening To Autistic Voices: Insights from Participatory Research on Prioritizing Mental Health for Autistic Individuals


Speaker:
Stephen Shore, EdD
Duration:
1 Hour 35 Minutes
Format:
Audio and Video
Copyright:
Apr 19, 2024
Product Code:
POS059792
Media Type:
Digital Seminar

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Description

Autistic adults have multiple, chronic, and potentially preventable healthcare needs as compared to same-aged non-autistic adults. But much of what is known about the health and healthcare needs of autistic adults has emerged from health services research without knowing the specific priorities of autistic people for overcoming barriers to care.  

As we transition to a social model of autism care, it's crucial to recognize the unique healthcare needs of autistic adults, often overlooked in traditional research. Join Stephen Shore, EdD, as he shares: 

  • Strategies for authentically engaging autistic individuals in research, bridging the gap between healthcare services and the specific priorities of the autistic community 
  • How strategies developed to include autistic individuals in research can benefit the greater population 

Together, we can ensure that research efforts not only address the needs of autistic individuals but also benefit society as a whole. Register today! 

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Speaker

Stephen Shore, EdD's Profile

Stephen Shore, EdD Related seminars and products


Stephen Shore, EdD, diagnosed with “Atypical Development and strong autistic tendencies” and “too sick” for outpatient treatment, Dr. Shore was recommended for institutionalization. Nonspeaking until 4, and with much support from his parents, teachers, wife and others, Stephen is now a full-time professor at Adelphi University and adjunct at NYU Steinhardt School of Culture, Education, and Human Development, focusing on aligning best practice in supporting autistic people to lead fulfilling and productive lives.

In addition to working with children and talking about life on the autism spectrum, Stephen is an internationally-renowned educator, consultant and author on lifespan issues pertinent to education, relationships, employment, and self-advocacy. His most recent book, College for Students with Disabilities, combines personal stories and research promoting success in higher education.

A current board member of Autism Speaks, the Organization for Autism Research (OAR), American Occupational Therapy (AOTF), president emeritus of the Asperger/Autism Network, and advisory board member of the Autism Society, Dr. Shore also serves on the advisory boards of AANE, and other autism related organizations.


Dr. Stephen Shore combines personal, practical, and academic experiences to promote fulfilling and productive lives for autistic and otherwise neurodivergent individuals as the rule rather than the exception.  

 

Speaker Disclosures:
Financial: Stephen Shore has employment relationships with Adelphi University, the New York University, and Steinhardt School of Culture, Education, and Human Development. He receives a grant from Patient-Centered Outcomes Research Institute. Stephen Shore receives royalties as a published author. He receives a speaking honorarium and recording royalties from PESI, Inc. He has no relevant financial relationships with ineligible organizations.
Non-financial: Stephen Shore is an adult who is on the autism spectrum. He is a member of the Asperger/Autism Network and International Society for Autism Research and serves on the board of directors for Autism Speaks.


Additional Info

Access for Self-Study (Non-Interactive)

Access never expires for this product.


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Objectives

  • List two factors that are necessary for authentic engagement to exist in participatory research.  
  • Determine how mental health supports and social well-being are top priorities for autistic individuals.  
  • Identify how strategies developed to include autistic individuals in research can benefit the greater population. 

Outline

  • Employ real life experiences from autistic individuals to better understand how to meaningfully include autistic people in all aspects of research  
     
  • Learn strategies for ensuring true engagement of autistic people is occurring in research 
     
  • Understand and describe why meaningful engagement of autistic people when studying autism related issues improves reliability and validity of research 
     
  • Risks and limitations of research and techniques    

Target Audience

  • Addiction Professionals 
  • Case Managers 
  • Licensed Clinical/Mental Health Counselors 
  • Occupational Therapists 
  • Occupational Therapy Assistants 
  • Physical Therapists 
  • Physical Therapist Assistants 
  • Psychologists 
  • Researchers 
  • School Administrators 
  • Speech-Language Pathologists 
  • Social Workers 
  • Teachers/School-Based Personnel 

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