Navigating Pediatric Palliative Care with Empathetic Communication, A Balance Between Hope and Honesty & Prognostic Uncertainty

Credit

Speaker

Jaime Jump, DO, FAAP Related seminars and products

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Jaime Jump, DO, FAAP, is an Assistant Professor of Pediatrics in the Divisions of Critical Care and Palliative Care at Baylor College of Medicine/Texas Children’s Hospital. She is also the medical director of respiratory therapy at Texas Children's Hospital, West Campus and the associate program director of the hospice and palliative medicine fellowship. Dr. Jump is passionate about palliative care in the pediatric intensive care unit and care of the pediatric chronically ill population.

Speaker Disclosures:
Financial: Dr. Jamie Jump has an employment relationship with Baylor College of Medicine. She receives a speaking honorarium and recording royalties from PESI, Inc. She has no relevant financial relationships with ineligible organizations.
Non-financial: Dr. Jamie Jump is an ad hoc reviewer for Children and Palliative Care Reports. She is a member of the American Academy of Hospice and Palliative Medicine, American Academy of Pediatrics, and a fellow of the American Academy of Pediatrics.

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Objectives

1. Determine how palliative care can be appropriate for any child with serious illness.
2. Evaluate how prognostic uncertainty can play a role in pediatric palliative care decision making.
3. Analyze how shared decision making can be facilitated through optimal communication strategies.
4. Prevent myths surrounding pediatric palliative care.

Outline

• Differences between primary and subspecialty palliative care
• Focus on maximizing quality of life
• Work to ensure care aligns with the goals/values of the child and family

• People are afraid of palliative care. Review literature data
• How to tell family about a palliative care consult. Do not ask, tell
• Advantages of longitudinal relationships with patients and families in introducing palliative care

• Eliciting goals of care-values, priorities, hopes
• Quality of life questions
• Shared decision making and benefits of shared decision making for “big” decisions
• How do people make decisions
• Language for shared decision making

• An approach to prognostication with pearls and pitfalls
• Case highlights of shared decision making and being mindful of prognostic uncertainty

• Palliative care can be appropriate for any child with serious illness and their family
• Patient and families fear palliative care
• ”Goals of care” are really hopes, values and priorities
• Some decisions are too big to make alone

Target Audience

• Social Workers
• Nurses
• Physicians